Itâs widely accepted that engaged patients tend to see better outcomes and are more likely to adhere to treatment plans. And if self-guided research is an indicator of patient engagement, it would stand to reason that self-educated patients are better patients. Physicians who favor patients doing their own research certainly think so. âI definitely think itâs a good thing,â says Kenneth Olson, MD, a retired family physician and faculty member of the American Academy on Communication in Healthcare, which offers programs and resources to improve communication among healthcare professionals and patients. âI wasnât sure what to think the first time a person brought a sheaf of printouts to me and said âI found this on the internet,â but it didnât take too long for me to realize they were
really invested in their care.â âToday, weâre increasingly responsible for the quality of care we deliver and weâre responsible for keeping costs under control. In both of these areas, an educated patient is our best patient,â says
Danny Sands, MD, a Boston-based internist and cofounder of the Society for Participatory Medicine, a Massachusetts nonprofit that promotes greater collaboration among healthcare professionals and patients. But there is no shortage of doctors who would agree with the 18th century British poet Alexander Pope, who wrote, âA little learning is a dangerous thing.â A posting on the website Quora last year asked why doctors get irritated at patients who research their conditions. The most popular answer came from a retired physician: âBecause, commonly, patients acquire misinformation, which requires that the doctor spend extra time explaining why it is incorrect, and because they seldom come up with anything helpful. It is difficult for most patients to understand how to evaluate sources of information for reliability, how to critically evaluate medical information, and how to tell what is important and what is not.â Information accuracy The internet serves up answers according to the wording of the query, search engine algorithms, the availability of information and the searchability of the websites. So how accurate is medical information online? Not very, according to a 2012 study in the Journal of Pediatrics. Researchers Googled 13 search phrases related to safe sleeping practices for infants, then compared the information on the first 100 websites identified in each search to the recommendations of the American Academy of Pediatrics (AAP). Of those websites, only 43.5% contained recommendations in line with the AAPâs, while 28.1% contained inaccurate information and 28.4% of the websites were not medically relevant. Furthermore, of the websites identified by searches, 19% were retail product review sites and 19% were associated with specific companies or interest groups. Product review sites had the lowest level of medical accuracy (8.5%), while government websites and those of national organizations had the highest levels of accuracy (80.9% and 72.5%, respectively). Educational websites were only 50.2% accurate. Search engines serve up a confusing mÃ©lange of links in response to queries. Enter âDo I have diabetes?â into Google and the first page of results includes links to a charitable foundation, WebMD, health.com, Healthline, a Readerâs Digest article, the American Diabetes Association, two blogs about diabetes management, a Mayo Clinic article, even the Choctaw Nation health site. Filtering all of that to find reliable, relevant information can be challenging even for a medical professional. Admitting youâre human There is another reason why physicians might roll their eyes at self-educated patients: Theyâre not used to being challenged by them. Accustomed to the asymmetrical nature of the doctor-patient relationship, some physicians have a hard time adjusting to self-empowered patients, says Sands from the Society for Participatory Medicine. âHistorically, doctors have delivered information in small, bite-sized units because knowledge is power,â Prescott says. âMaybe we fear that if we give too much information weâll lose some of our power.â And, sometimes, the patient stumps the physician. Communicating effectively with educated patients can mean physicians must admit to not knowing everything. Faced with a patient citing an unfamiliar study or online article, a physicianâs reflexive response might be to dismiss it or bluff their way through it. âAs Iâve grown in experience and maturity, Iâm more comfortable saying I donât know,â says John Prescott, MD, chief academic officer of the Association of American Medical Colleges. Primary care physicians are more likely to be faced with something unknown because of the wide range of their practices and diversity of their patients, he says. Increasingly, medical schools are teaching students how to interact effectively with patients who have their own ideas, Prescott says. He notes that older faculty members, accustomed to unquestioning patients, sometimes have difficulty teaching that skill, while younger physicians who grew up with the internet are likely to be more accepting of their patientsâ queries. How to react Of course, not all self-educated patients learn the right lessons. Some present their doctors with false and even harmful information. Some find third-hand anecdotes on forums and fringe science to be more credible than anything their physician says. This can be exasperating. What pediatrician would not want to scream in frustration when confronted by a parent citing Jenny McCarthyâs baseless pronunciations on the dangers of immunizations? But doctors need to remember that many patients are scared and need reassurance, says Laolu Fayanju, MD, a family physician in Chicago. âTheyâre looking to pretreat themselves with internet knowledge,â he says. Most of his patients are elderly and only about 10% do research, Fayanju says, adding that he wishes the percentage were higher because it means the patient is engaged in his or her treatment. No matter the merits of the information, physicians should resist the urge to dismiss it. Itâs important to recognize that the patient is interested, which is better than being apathetic or in denial. Ajoy Kumar, MD, a family physician in St. Petersburg, Florida, says it is not
unusual for him to spend the first 10 minutes of a 15-minute appointment discussing a patientâs research and answering questions. While that can be frustrating, he says it is an opportunity to teach the patient about credible sources for information. âYou have to educate them about what sites are good,â Kumar says, adding that itâs important not to put patients on the defensive by dismissing their findings. And itâs preferable to have patients come to the doctor with printouts and questions rather than diagnose and treat themselves, he adds. Physicians have a duty to warn patients if their research is incorrect, particularly if it might be harmful. âIâm not afraid to let patients know if the stuff theyâre using is junk,â says Horecka, the practitioner in rural Minnesota. âAfter 30 years (of practice), Iâm pretty sure of myself and Iâm not afraid to disagree with them. Iâm also open-minded enough to realize I donât know everything.â The research a patient does also can give a physician valuable insight into the patientâs fears and priorities, Sands says. Guided research Itâs unrealistic for physicians to expect that patients wonât look up symptoms and diseases. And physicians canât control their patientsâ education, internet search skills or ability to distinguish good evidence and research from bad. In the worst cases, patients might be so convinced theyâre right that they defy their doctors, fail to adhere to the prescribed treatment plan or even go doctor shopping until they find one more sympathetic to their ideas. Since patients will go online, itâs a good idea to send them to reliable sites. Fayanju says he steers patients to the National Institutes of Health, the Centers for Disease Control and Prevention and other credible sources. Here, primary care physicians have an advantage over specialists in that they tend to have longer relationships with their patients and sometimes they can draw on that trust to persuade patients to follow the right course. Itâs important to remember, however, that most patients will have difficulty wading through clinical reports and need information written to their level. Physicians can stock their offices with commonly-used material and printouts from credible sources. Physicians also can teach patients to identify sites sponsored by pharmaceutical companies or businesses hoping to sell treatments or medicines. The information on them is not necessarily compromised, but the patient should be aware of the commercial motivation behind it. The important point is that, regardless of what the poet wrote, a little learning doesnât have to be a bad thing.